Hi All! Finally feeling well enough to put up a post even if it is not a pleasant one.
I am definitely unwell - Sarcoidosis effecting both lungs has resulted in complete respiratory collapse, congestive cardiac failure, pneumonia and advanced asthma. Just had 3 weeks in Calvary Hospital, Canberra, and now back home on "Home Oxygen" 24/7. Specialist says to sort out my affairs and make an appt. to see him in 3 months (nice way of giving you a 'time-line'!)
Cannot eat - have lost 15kg (over 2 stone) in 3 weeks - Rhonda and I are making 'Life adjustments with a spirit of inevitable denial - we know what is coming. Grandsons coming down Saturday to see "Pa!" - guess that'll be their last Christmas with "Pa"!
Guess you won't see many more posts on here from me but when up to it I'll try to manage a few words. When the day arrives I'll have my daughter, Kat, put up a final message.
I really don't know what else to say this afternoon - we are going to fight this 'thing' for every hour and day we can claw back from it.
Must go for now, too tired to write more today but will post again. Have arranged for our daughter, Kat, to put up the eventual final post! Pain hurting, must go!
I created this blog to talk about my home region. I've used many images, including archival images but mostly I've used my own images.
27 comments:
You are in our prayers my friend.
and mine as well.
Hi John
Have been thinking of you in your absence from here. Let me know if there is anything I can do for you guys.
Jo
I don't have the words. I am so sorry for you, for Rhonda and for your family. I am sending all my good wishes to you all.
OH NO! John, I am so so sorry this is happening to you and you must know that I feel for you and Rhonda. I just don't know what to say ... you sound like you have a very good 'attitude' and I hope this helps you through. Not fair! I was hoping to meet you sometime but things here have been so hectic and I'm in the middle of supporting Petal. He hasn't come to terms with things yet, so a long battle ahead for us.
Love and peace to you my friend. Big hugs to you both. Sue xox
john
it seems we have been bumbling along in our virtual worlds for quite some time now.
so sad to hear your news..I am sending you all my best wishes and a manly hug...not that it helps eh?
don't stop blogging, even snippets.... let your blogging chums walk alongside you a way.....
take care jonno
what can one write John. Thanks for being a friend you will be missed a lot.
Oh I just popped over from Maa's blog and I just wanted to send my prayers and hugs. B
You are in my prayers dear John. This sad news breaks my heart to read. Anything I can do in way of support please tell Kat to let me know. xx
oh dear me John, I am so terribly sorry. God Bless you and your family. Sending prayers for you all and hope you will be at peace with it all eventually.
Gill in Canada
Hi Jon,
I saw on Maas Journal that you needed prayers and so I'm here sending them to you from the bottom of my heart.
Bless you and may you have peace with your remaining days. I'm so sorry.
Hugs and Blessings,
Karen from My Colonial Home Blog
John,
So sorry to hear the news, we will send all our prayers your way. United prayers have done some amazing things.
Doc
Thinking of you, John!
My 'affairs' have been put in order for over a year now. Do not give in to it if you can help it. Learn to love that o2 tubing that follows you around.
Will keep you in my thoughts.
Sharon
Hello John,
You don't know me but I live in New Zealand and am a friend of Sue' (Maas Journal) I am so sad to hear of you news and health condition. May you find comfort in God in this time and enjoy time with family as that is what the want to remember the most.
Hugs Fiona
Hey John - I found you through Joe. I wish it could have been at a different time.
Joe considers you a friend in the blogging world and well, any friend of Joes.
I just wanted to say that I was thinking of you. Sarah
Oh, John. *hugs* and God bless to all. I pray some radical treatment will help. ♥
It's weird - any attempt to improve my position only makes my condition worse - a real Catch-22 situation. I will die from Congestive Cardiac Failure as I'm swapped between medical grade O2 and O2 from the condense Tonight we start with bottled Med Grade O2 to avoid 'mouth breathing'and by-passing the O2 condenser - at least I wont wake up confused and disoriented and with increased cerebral deficit (perhaps?)
Blessings and prayers for you, John... from Susannah here in New York. May God be with you and give you guidance and strength.
We're all walking with you John; wishing you strength. Cro x
Linda G put up a post about you John so I thought I would visit and give you a hug from Nebraska, USA.
Keep on fighting! xo
John,
My prayers are with you.
Kelly
I have visited from time to time but don't think i've left a comment to date.
I'm very sorry to hear your news and send along my best wishes. I'll send the prayers to the Being Upstairs.
megan
I am sending my warmth and love to you...Sophie's my name...Jim and Ron are my Dads.
PS we read your book you sent to us...you have opened up our world that much more.
Regards> Ron...Sophie's Dad
John, my dear blogger friend. This is not the news I was expecting from your usually very informative posts about your beautiful country.
I am deeply sorry you are going through this health crisis. It is my hope that you will find some comfort through this.
Sending all our positive energy to you and your family from the eastern shore of Nova Scotia.
Take good care my friend.
Jim Cuvelier
Every day my thoughts go to you. Another hug coming your way. Sue
I came over from LindaG's to wish you well..breathe easy:)
My prayers and thoughts are with you.
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